So glad I found your site after reading all the other alarming information. I was diagnosed a year ago with LS, but everyone has talked of Gynaecologist referals so how come I ended up in Dermotology? What worries me are the lumps & bumps which are referred to and which I have plus blisters. Help is this normal? I am using an emulent based cream for washing & barrier protection & a stronger steriod cream (as the first cream didn’t work, but having said that, was I not using enough, as they say sparingly!) How do you know if you are reacting to the creams etc with this problem? How demoralised I feel as a woman who looked forward to & shortly enjoyed the freedom of sex after her hysterectomy to now not being able to have sex. (Sorry feeling low). Its also funny that after the ‘op’ I started swimming again & it is said that clorine can affect you, it was a few months after when problems started together with a reaction to 2 medications really kick started it. I also have read that you can be alergic to ‘sperm fluid’ is this then also another starting point after the ‘op’ since previous protection used?